The acceptability of participating in data linkage research: research with older Australians

dc.contributor.authorHarrison, Stephanie L
dc.contributor.authorMilte, Rachel
dc.contributor.authorBradley, Clare Eileen
dc.contributor.authorInacio, Maria C S
dc.contributor.authorCrotty, Maria
dc.date.accessioned2018-12-07T06:03:35Z
dc.date.available2018-12-07T06:03:35Z
dc.date.issued2018-06-12
dc.descriptionThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.en_US
dc.description.abstractAustralians are increasingly concerned about the privacy of their data, but the biggest concerns relate to online services and identification fraud. Australians may be supportive of research that uses linked data; however, there have been conflicting findings as to whether formal consent from individuals should be sought, and the views of the older population have not been elicited specifically. A previous survey suggested half of Australians would expect consent to be sought for the use of de‐identified health information for research purposes, but the respondents were not specifically asked if they would expect an opt‐in or opt‐out approach to consent. The objectives of the current study were to determine if older Australians would find it acceptable to be part of the proposed registry and to explore different methods of consent.en_US
dc.identifier.citationHarrison, S.L, Milte, R., Bradley, C.E., Inacio, M.C.S. and Crotty, M., (2018). The acceptability of participating in data linkage research: research with older Australians. Australian and New Zealand Journal of Public Health, 42(5), 497-498.en_US
dc.identifier.doihttps://doi.org/10.1111/1753-6405.12797en_US
dc.identifier.issn1753-6405
dc.identifier.urihttp://hdl.handle.net/2328/38665
dc.language.isoenen_US
dc.oaire.license.condition.licenseCC-BY-NC-ND
dc.publisherWileyen_US
dc.rights© 2018 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.en_US
dc.rights.holder© 2018 The Authorsen_US
dc.titleThe acceptability of participating in data linkage research: research with older Australiansen_US
dc.typeArticleen_US
local.contributor.authorOrcidLookupHarrison, Stephanie L: https://orcid.org/0000-0002-8846-0946en_US
local.contributor.authorOrcidLookupBradley, Clare Eileen: https://orcid.org/0000-0002-0313-3277en_US
local.contributor.authorOrcidLookupCrotty, Maria: https://orcid.org/0000-0002-2996-5135en_US
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