The acceptability of participating in data linkage research: research with older Australians
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Date
2018-06-12
Authors
Harrison, Stephanie L
Milte, Rachel
Bradley, Clare Eileen
Inacio, Maria C S
Crotty, Maria
Journal Title
Journal ISSN
Volume Title
Publisher
Wiley
Rights
© 2018 The Authors. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is
properly cited, the use is non-commercial and no modifications or adaptations are made.
Rights Holder
© 2018 The Authors
Abstract
Australians are increasingly concerned about the privacy of their data, but the biggest concerns relate to online services and identification fraud. Australians may be supportive of research that uses linked data; however, there have been conflicting findings as to whether formal consent from individuals should be sought, and the views of the older population have not been elicited specifically. A previous survey suggested half of Australians would expect consent to be sought for the use of de‐identified health information for research purposes, but the respondents were not specifically asked if they would expect an opt‐in or opt‐out approach to consent. The objectives of the current study were to determine if older Australians would find it acceptable to be part of the proposed registry and to explore different methods of consent.
Description
This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is
properly cited, the use is non-commercial and no modifications or adaptations are made.
Keywords
Citation
Harrison, S.L, Milte, R., Bradley, C.E., Inacio, M.C.S. and Crotty, M., (2018). The acceptability of participating in data linkage research: research with older Australians. Australian and New Zealand Journal of Public Health, 42(5), 497-498.