Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements

dc.contributor.authorMcConigley, Ruth
dc.contributor.authorShelby-James, Tania Maree
dc.contributor.authorCurrow, David Christopher
dc.date.accessioned2013-10-24T06:11:19Z
dc.date.available2013-10-24T06:11:19Z
dc.date.issued2013-08-19
dc.description.abstractBackground: It can be difficult to engage consumers in health decision making. This is particularly so in the area of palliative care, where consumers are very unwell and are unlikely to become involved in long term programs that promote consumer input. This paper explores the possibility of using ‘Consumer Impact Statements’ to facilitate the inclusion of the viewpoint of people at the end of life in the process of policy and decision making, particularly in the area of subsidy of pharmaceuticals used in palliative care. Search Strategy: A broad search was conducted to find information about the use of impact statements in any health field. The health literature and grey literature were searched to explore the use of Consumer Impact Statements to date. Results: No papers were found describing the use of Consumer Impact Statements in the palliative care setting. Health impact assessment is used in the areas of environmental health and community health. Impact statements are less commonly used in other areas of health, especially policy development, and no formal description of a Consumer Impact Statement was found. Discussion: There is considerable scope for developing the use of Consumer Impact Statements to promote the consumer viewpoint in health decision making, because it will allow people who are otherwise unlikely to contribute to the public debate to have their views heard by decision makers. Conclusion: The use of Consumer Impact Statements is particularly suited to palliative care, given that consumers are often otherwise unable to contribute to the public debate.en
dc.description.sponsorshipThis review was conducted by the Palliative Care Clinical Studies Collaborative, which is funded by the Australian Government Department of Health and Ageing.en
dc.identifier.citationMcConigley, R., Shelby-James, T., and Currow, D.C., 2013. Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements. Health Expectations, DOI: 10.1111/hex.12118.en
dc.identifier.doihttps://doi.org/10.1111/hex.12118en
dc.identifier.urihttp://hdl.handle.net/2328/27073
dc.language.isoen
dc.oaire.license.condition.licenseIn Copyright
dc.publisherJohn Wiley and Sons Ltden
dc.rightsAll rights reserved.en
dc.rights.holder(C) John Wiley & Sons Ltden
dc.subjectPalliative care
dc.titlePromoting the consumer voice in palliative care: exploring the possibility of using consumer impact statementsen
dc.typeArticleen
local.contributor.authorOrcidLookupCurrow, David Christopher: https://orcid.org/0000-0003-1988-1250en_US
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